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Susie Mawhinney's avatar

When I was 22 I visited a friend in hospital, she was undergoing tests for sudden onset epilepsy. She was 21 years old. I sat on the edge of her bed and we chatted, she wasn't sick, had no hideous medical tubes running from various parts of her body, she may as well have been sitting on my sofa. Until she had a seizure.

Terrified, I watched her face crumple into an unrecognisable sort of gremlin as her body became rigid and a violent seizure took her the devil only knows where? Trembling I ran in search of a nurse then fled back to my apartment on the seafront.

From my big bay window I watched the sun shine down on an aquamarine sea as calm as a fishpond, a hot mug of tea—yup that old cure-all—held in still trembling hands and I felt safe.

Shame came later... and boy it was deep and ugly!

I returned the next day, spoke to my friend, to the nurse, apologised, admitted my fear and asked for help—oh the irony!

Never told a single soul about that til now... never felt so ashamed as I did that day... it still makes me squirm.

Imagine me cheering you on, whooping around my kitchen shouting 'Go Girl, GO!'

Paulette Bodeman's avatar

Thank you for sharing this poignant post, Alisa. It's such an important topic, and your heart and specificity help foster the conversation.

In a long-ago chapter of my life, I was a barber. As a young woman, quite naive about the world, a father would bring his son, probably around 10 or 11, who had Tourette's. I had never heard of it. The first time he sat in my chair and started making sounds, cussing, and twitching, I didn't understand what was happening. But grace guided me. I stayed calm, talked with the boy, and finished the haircut. Every few months, the father would bring his son again, and if I was busy, he'd wait. It was a lesson I only understood later— that we are all different, yet fundamentally the same.

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