I Swear... đ§ âĄď¸
Plus, the Old "Tragedy + Time = Comedy" Formula Meets Shirley Jackson
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Greetings from Cambridge and the blizzard⌠where itâs actually been so stunningly quiet. Poetry weather, for certain. âď¸
I want to talk about something that keeps breaking my heart: how coverage of neurological disability so often ends up increasing stigma, even when everyone involved insists theyâre trying to do the right thing.
When you live with a neurological disabilityâTouretteâs, epilepsy, anything rooted in a nervous system that misfires publiclyâno one feels more horror or shame than we do at the discomfort other people experience around us. That part rarely makes it into the headlines.
I have epilepsy. Iâve lost relationshipsâfamily relationshipsâbecause I chose to be open about it. Because I refused to be ashamed. Because my nervous system makes other people uneasy, and they didnât know where to put that feeling.
I understand the fear. Truly. Neurological events are inconvenient. Theyâre unpredictable. They interrupt the smooth fantasy that lifeâand bodiesâare controllable. If I went to a work event with too many flashbulbs, I might very well have a seizure on the carpet or in the audience. I could become an embarrassment. A disruption. A problem that needs to be managed away.
But none of that would be me.
All of it would be a nervous system wired differently than yours. Not defective. Not malicious. Just different.
The human brain has eighty-six billion neurons. We call it mysterious. We call it miraculous. And then, when it behaves in ways we donât likeâways that arenât tidy or polite or narratively convenientâwe suddenly decide it needs to be edited out, apologized for, explained away.
Thatâs what made the recent coverage around the BAFTAs so deeply saddening.
John Davidson, a Scottish campaigner for Touretteâs syndrome, was in the audience. A slur was uttered involuntarilyâbecause Touretteâs is involuntary. What followed wasnât just a discussion of editorial standards or broadcast delay. It was a cascade of moral panic, framed as responsibility.
People rushed to say it should have been bleeped. That it caused offence. That apologies were owedâto the actors onstage, to the audience, to the nation. And of course, offence matters. Harm matters. Words matter.
But so does context. So does compassion. So does understanding that for people with Touretteâs, causing offence is often profoundly distressingânot because they donât care, but because they care deeply and cannot control what their bodies do.
What gets lost in this coverage is the quiet, crushing truth: when a neurological disability becomes a scandal, the disabled person becomes the problem to be managed. Not the system. Not the impossibility of live television. Not the limits of control.
Just the body.
I keep thinking about how many times disabled people are askedâimplicitly or explicitlyâto remove themselves to make others comfortable. To leave early. To stay home. To go dark.
John Davidson reportedly chose to leave the ceremony early. I know that move well. Itâs the instinct to minimize yourself before someone else does it for you. Iâm writing a lot about it these days.
But hereâs what I wish we could say out loud: our nervous systems are not moral failures.
If someone has Touretteâs and a tic includes language that shocks, the answer is not shame. It is not erasure. It is not pretending the disability doesnât exist while simultaneously punishing its effects.
Grace does not mean endorsement.
Compassion does not mean harm doesnât matter.
And accountability does not require turning disabled people into cautionary tales.
So, stop it. (cue: Bob Newhart voice đ)
There will be momentsâat award shows, on red carpets, in classrooms, at workâwhen nervous systems misfire. When bodies do something unexpected. When the illusion of control cracks.
When that happens, we get to choose what kind of society we are.
One that treats disability as an editorial mistake to be apologized for.
Or one that understands that with eighty-six billion neurons, the human brain was never going to behave itself neatly on cue anyway.
Some grace, please, for faulty nervous systems.
We were not in charge of their design.
We are just living in them.
Now⌠Our Little Weekly Comedy Tutorial
PAIN + DISTANCE = COMEDY
Or: Tragedy Is Just Comedy Waiting for a Better Draft
Core Principle:
Comedy isnât the absence of pain.
Itâs pain processed with perspective.
This weekâs lesson is about timingâspecifically, the lie weâre told about âtoo soon.â
When Itâs Too Soonâand When Itâs Perfect
People love to say something is âtoo soonâ when what they really mean is:
Iâm still inside it.
Comedy doesnât arrive after pain disappears.
It arrives when pain stops being the showrunnerâthe veritable Liz Lemon in your life.
This is why Nora Ephron could write hilariously about betrayal, divorce, humiliation, and illnessânot because those things didnât hurt, but because she waited just long enough to see their shape.
She didnât write from inside the wound.
She wrote from the chair across from it, coffee in hand, saying:
Oh. Thatâs what that was.
Perspective is not cruelty.
Itâs survival with a point of view.
The Shirley Jackson Rule
Shirley Jackson didnât wait to be comfortable.
She waited to be clear.
Her humorâespecially the domestic kindâis sharp because it comes from watching pain repeat. Watching fear organize itself into ritual. Watching people normalize the unbearable.
Thatâs distance, too.
Time doesnât just soften pain.
It reveals patterns.
And once you can see the pattern, you can make a joke about it. Life Among the Savages is a prime example of how Jackson makes this work.
Why Humor Is Often the Last Honest Language Left
When something is happening, everyone lies:
We minimize
We spiritualize
We brand
We say itâs âfine.â
Comedy shows up later and says:
Actually? No.
Thatâs why humor feels dangerous.
It tells the truth after the press release.
And that laugh people worry about?
It isnât disrespect.
Itâs recognition.
Exercise: Write from the Future
Take something painful.
Not healed. Not resolved. Not redeemed.
Now, write about it from five years in the future.
Not wiser.
Not above it.
Just far enough away to see the outline.
Ask yourself:
What was I pretending not to know?
What kept happening that I refused to name?
Where was the joke hiding while I was busy surviving?
Thatâs where comedy lives.
There will be a time when we can talk about now (awful as it is)âand laugh.
That laugh wonât mean it didnât matter.
Itâll mean tragedy didnât prevail.
Comedy isnât denial.
Itâs proof you got out aliveâand brought a story back.
Ok, thatâs what I got this week. Stay warm - xoxo - Gotham Girl
PS - If you can make it, tune in to Substack Live tomorrow night, February 24th, to pop the champagne with us for the launch of <Mary L. Tabor>âs luminous novel Who By Fire. Sheâll be joined by our own Kimberly Warner, author of Unfixed, and it will be a conversation you wonât soon forget!!! Details below.
PPS - I am a human typo. Amnesty appreciated.





When I was 22 I visited a friend in hospital, she was undergoing tests for sudden onset epilepsy. She was 21 years old. I sat on the edge of her bed and we chatted, she wasn't sick, had no hideous medical tubes running from various parts of her body, she may as well have been sitting on my sofa. Until she had a seizure.
Terrified, I watched her face crumple into an unrecognisable sort of gremlin as her body became rigid and a violent seizure took her the devil only knows where? Trembling I ran in search of a nurse then fled back to my apartment on the seafront.
From my big bay window I watched the sun shine down on an aquamarine sea as calm as a fishpond, a hot mug of teaâyup that old cure-allâheld in still trembling hands and I felt safe.
Shame came later... and boy it was deep and ugly!
I returned the next day, spoke to my friend, to the nurse, apologised, admitted my fear and asked for helpâoh the irony!
Never told a single soul about that til now... never felt so ashamed as I did that day... it still makes me squirm.
Imagine me cheering you on, whooping around my kitchen shouting 'Go Girl, GO!'
Thank you for sharing this poignant post, Alisa. It's such an important topic, and your heart and specificity help foster the conversation.
In a long-ago chapter of my life, I was a barber. As a young woman, quite naive about the world, a father would bring his son, probably around 10 or 11, who had Tourette's. I had never heard of it. The first time he sat in my chair and started making sounds, cussing, and twitching, I didn't understand what was happening. But grace guided me. I stayed calm, talked with the boy, and finished the haircut. Every few months, the father would bring his son again, and if I was busy, he'd wait. It was a lesson I only understood laterâ that we are all different, yet fundamentally the same.